A NHMRC-funded study by the International Program of Psycho-Social Health Research (IPP-SHR) is leading the way to ensure that patients diagnosed with a haematological disorder (blood-related cancer) receive access to palliative care services.

Palliative care is a holistic, compassionate response to terminal illness, with a focus on quality of life.

“While celebrating the advances in treatments for haematological cancers, we also need to be mindful of the importance of responding sensitively to the palliative needs of patients and their families”, says IPP-SHR researcher Dr Pam McGrath (pictured).

“The evidence indicates that in this respect haematology patients are at a significant disadvantage when compared to other cancer groups,” said Dr McGrath.

The study found that while palliative care is generally not well integrated into haematology services, this can be successfully achieved.

“Research shows that palliative care not only benefits patients but ensures that their families are left in a much better situation when facing the challenge of rebuilding their lives after a significant loss,” said Dr McGrath.

“Many haematology treatments are high-tech and invasive and we have to be very careful that people are supported to make choices based on what is right for their individual circumstances’, said Dr McGrath.

The findings of this study are available in a booklet, “Haematology and Palliative Care: Towards an Integrated Practice”, which is being distributed to palliative care and haematology services Australia wide.

For information visit www.ipp-shr.cqu.edu.au